Martedì, 23 Ottobre 2018
CAGLIARI

Lou Gehrig's patients 'ready to die' in Italy reform protest

English
© ANSA

Cagliari, November 13 - The leader of a movement
representing sufferers of an acute version of Lou Gehrig's
disease on Tuesday said he and other movement members were
prepared to die "live on tv" to protest insufficient government
financial assistance to patients who need respirators.
From a hospital bed in Cagliari, Sardinia, Salvatore Usala,
head of the November 16 Committee (Comitato 16 Novembre), said
that a recent government amendment to budget laws that earmarked
some 200 million euros for the ill and disabled was not likely
to affect him and others who suffer from the same condition.
"It's an insult, shameful," he said.
As a protest measure, Usala said he and a group of other
patients were prepared to demonstrate - without artificial
respirators to help them breathe - in front of the economy
ministry in Rome on November 21.
After five or six hours, Usala said, the batteries on their
portable devices would run out and they will die from
suffocation.
Countering accusations from some politicians that this sort
of protest is akin to blackmail, Usala said that financial
assistance is a Constitutional right.
With sufficient aid, sufferers of Lou Gehrig's Disease, or
amyotrophic lateral sclerosis (ALS), could live at home,
surrounded by family, Usala said.

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