Venerdì, 21 Settembre 2018

Italian girl who won right to stem-cell therapy dies


Rome, June 5 - A ban on stem-cell therapy that was
only recently overturned and legal snafu that delayed her
treatment "have caused the death" of a two-year-old Italian girl
with a severe genetic disorder, said the Italian Stamina
Foundation for stem-cell research and treatment.
Stamina President Davide Vannoni said on Wednesday that the
girl, who died June 2, can be considered the "first death caused
by the legal system".
Her family, who won the right to treatment April 9 in an
appeals court, said they would be pressing charges against the
health ministry for voluntary manslaughter.
On May 23, a law legalizing stem-cell therapy, research
and permitting those who had begun treatments to continue them
passed overwhelming in the Italian Senate with 259 yes votes,
two nays and six abstaining.
"The fact that her family won the right for her treatment
in court should have made her therapy immediate, however the
toddler fell fourth on the waiting list," Vannoni said.
"As soon as the Senate passed the law, the child could have
been cured immediately. Hopefully this will not be the first of
a long series," Vannoni said.
In one high-profile case last March, a father who sued in
court on behalf of his son and won the right to treatment, also
appealed on behalf of his daughter who was barred from receiving
the therapy by another judge, but lost.
Vannoni, whose research group carries out treatments at a
Brescia hospital, has been battling for patients be given the
choice of stem-cell treatments from Stamina laboratories, not
only State-sponsored centers.
With the recently passed law, the Higher Institute for
Health (ISS), a state health institution for research and
education, will coordinate research and therapy together with
the Italian pharmaceutical agency AIFA and the National
Transplant Centre.

Photo: Stamina President Davide Vannoni

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