Giovedì, 18 Ottobre 2018
LIZZANELLO

Twins with painful disease seek help or right to die

English
© ANSA

Lizzanello, September 11 - Twin brothers in
southern Italy suffering from a rare and painful disease that
forces them to breathe through respirators asked Wednesday for
greater government help.
Otherwise, "pull the plug and let us die," say Marco and
Sergio Quarta, 34, who have suffered since they were 10 from
Duchenne dystrophy, a debilitating form of muscular dystrophy
that is specific to males.
The pair have written to President Giorgio Napolitano, the
ministers of health and justice, and other political leaders
asking for more financial help and assistance with new
therapies.
The brothers are cared for at home by their parents but
want to try a range of new treatments, including stem-cell
therapies.
They also say funding they were promised has disappeared.

© Riproduzione riservata

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